Reviews (7)

Must Read for parents who adopt and for professionals who work with kids
This book is fantastic! It explains Fetal Alcohol Syndrome/Effects, and gives the reader understanding and tools to use to work with people who have FAS/E and also how to love and accept them and appreciate them as they are. I have an adopted son with FAE and when I first realized he had this I was very discouraged because all I had heard about FAS/E was so negative. I didn't know if I would be successful being the mom he needed me to be. This book gave me such insight. It also showed me that some of what I have dealt with with my son is normal and it is okay. It is a book that celebrates life in all its forms -- even the challenging form FAS/E creates. Thank you to Liz and Jodee Kulp for sharing their life with us.

Taking Hope
Sometimes just being able to take hope that the one we love so dearly will "have a chance" is the greatest gift that can be given.That's where this story told by a mom and her daughter strikes home.It's a short book for a great story.There are no miracles except those that come from hardwork and the grace of life.But that grace is there.The mom give us good links; the daughter gives us insight -- both are invaluable.It's an inspiring story of the good that can be worked by effort and self understanding.The barriers of biology cannot be made to go away -- but they can be climbed over.

Invaluable tool for practioners working with FASD children
This is a well written account from a child and parent regarding the reality of living with Fetal Alcohol Syndrome/Effects. Not only is this an important internalization for the practitioner but an important tool for parents and family to work through the acceptance of the profound life altering condition this birth defect manifests.Regardless of your level of education this is an important publication for a devastating condition for parent and child.
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Subjects:  1. Children: Grades 4-6    2. Health & Fitness / Diseases / Nervous System (incl. Brain)    3. Alcohol Abuse    4. Brain Injuries    5. Diseases - Nervous System (incl. Brain)    6. Fetal alcohol syndrome    7. Health & Fitness    8. Mentally handicapped    9. Teenage girls   

Reviews (5)

A Truly Grateful Parent
Dr. Streissguth's Book is the best explanation of the effects of alcohol on the unborn child, that I have ever found.For years, I did not know what was wrong with the beautiful little girl that my husband and I adopted.Twenty-seven doctors, psychologists, psychiatrists, school counsellors, guidance counsellors, religious leaders, police or addictions counsellors over the past 16 years never once, suggested that FAS/E was the problem.For every person in those positions dealing with troubled children, "Fetal Alchohol Syndrome: A Guide for Families and Coommunities" should be compulsory reading! The first book to read on FAS
Written by one of the leading behavioral experts in the field.A must for anyone with a problem child, in medicine or psychology, social or justice work...it is a recognized primer for the topic of Fetal Alcohol Syndrome.

Excellent FAS resource
Dr. Streissguth is one of the pioneers in the identification and treatment of Fetal Alcohol Syndrome and the entire spectrum of congenital damage arising from in-utero exposure to alcohol.25 years after the identification of this common and devastating disability, most efforts in the academic community still focus on definition and diagnosis, with relatively little attention paid to treatment.Dr. Streissguth stands atop the heap in extending her basic science research into the actual lives of affected individuals, their families, and the communities in which they live.I consider her the foremost authority in the academic community on exploring pragmatic options for helping affected individuals, families, and community.Read more

Subjects:  1. Diet / Health / Fitness    2. Diseases    3. Diseases - General    4. Fetal alcohol syndrome    5. Medical    6. Perinatology & Neonatology    7. Pregnancy & Childbirth    8. Substance Abuse In Pregnancy    9. Drug addiction & substance abuse    10. Materno-fetal medicine    11. Neonatal medicine   

Reviews (8)

FAScinating Journey- a Guidebook
Jodee Kulp's book "Our FAScinating Journey" is a wonderful resource for every family that is touched by FASD.Fetal Alcohol Spectrum Disorders has been around as long as alcohol has, but as an identified syndrome it is really in its infancy.There are not well worn paths that parents like me can follow and I appreciate the great lengths that Jodee went to in documenting the various therapies, strategies and teaching methods that they used in their home.
Concerning, all over the place and disorganized
I immediately found the page design of this book disturbing. There are blurbs and comments all over the margins, and bits of story and anecdotes without any explanation. It is a real ADD kind of lay out, and made the book as a whole rather difficult to read. The book could have benefitted from a real editor.
A Truly Practical Guide to Raising a Child with FAS
This is one of the most practical guides to therapies and treatments for FAS.There are references for physical therapies, sensory therapies and food allergies.Jodee and her daughter have tried to collect all their experiences to make them available to other families so that they do not hve to "reinvent the wheel".The companion book, *All That I Can Be* by Liz Kulp is perfect for teenagers who want to know what FAS is all about. ... Read more

Subjects:  1. Biography / Autobiography    2. Brain Injuries    3. Children with Special Needs    4. Diseases - Nervous System (incl. Brain)    5. Family & Relationships    6. Fetal alcohol syndrome    7. General    8. Health & Fitness    9. Mentally handicapped   

Reviews (1)

Ohhhh Pleeease---FAS??? Prove it!!!! hahahahahaha
I have two beautiful children and a hard working husband. I live in Paradise. Where every day is a vacation.So what if my kids are a little differnt from everybody else????? ADD ODD ADHD,FAS FAE,it is all a crock.I drank and smoked the whole time I was pregnant with both my kids, and used the whole time I was pergnant with my first kid. How a child acts has nothing to do with what I did or didn't do!!!! Kids will be kids, and a good parent knows their own childs limitations. This book is a total waste of time and I don't know why my family wanted me to read it. I didn't get past page two. This book is only for complete losers!!!!! So what if the facts line up and my kids really do have FAS like my husband says, they'll never prove it.
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Subjects:  1. Fetal alcohol syndrome    2. History    3. Medical    4. Medical / Nursing    5. Perinatology & Neonatology    6. Public Health    7. Social aspects    8. Sociology - General    9. United States    10. History / Europe / General    11. History of ideas, intellectual history    12. History of medicine    13. Personal & public health    14. Sociology, Social Studies    15. USA   

Reviews (2)

Facts, plus much more
The Broken Cord" is the heart-wrenching story of a young man, single and in graduate school, who adopts a developmentally disabled boy who, like himself, has Native American ancestry. The man learns gradually that his son suffers from Fetal Alcohol Syndrome, just as the medical community is starting to figure out what Fetal Alcohol Syndrome is. As a child psychologist, I have found the information in this book invaluable. You can read research papers, journal articles, and textbooks to learn all of the facts of Fetal Alcohol Syndrome (a complex set of deficits caused by in utero exposure to alcohol), but "The Broken Cord" goes well beyond that and lets you know what it's like to live with, raise, and love a child with this disorder. This book is full of love, pain, and limited triumphs. It is also very well-written. Have a box of tissues handy.

the broken cord
I highly recommend this book for people who want to know a personal experience with fetal alcohol syndrome. This book will want to make you cry. And make you very angry at mothers who risk their babies lives with their selfish use of alcohol while pregant. ... Read more

Subjects:  1. Alcohol Abuse    2. Biography    3. Biography / Autobiography    4. Biography/Autobiography    5. Family relationships    6. Fetal alcohol syndrome    7. General    8. Health Care Delivery    9. Patients    10. Perinatal Medicine    11. United States   

Subjects:  1. Epidemiology    2. Fetal Alcohol Syndrome    3. Health/Fitness    4. Medical / Nursing    5. Perinatology & Neonatology    6. Substance Abuse In Pregnancy    7. Women's Health - General    8. Materno-fetal medicine   

Subjects:  1. Alcoholism in pregnancy    2. Allied Health Services - General    3. Children of prenatal substance    4. Children of prenatal substance abuse    5. Drug abuse in pregnancy    6. Education    7. Guidance And Counseling    8. Prevention    9. Psychology    10. Psychotherapy - Child & Adolescent    11. Rehabilitation    12. Substance Abuse & Addictions - General    13. Adolescents    14. Alcoholism    15. Children    16. Drug addiction & substance abuse    17. Paediatric medicine   

Subjects:  1. Children of prenatal substance    2. Children of prenatal substance abuse    3. Health/Fitness    4. Medical / Nursing    5. Pediatrics    6. Perinatology & Neonatology    7. Substance Abuse In Pregnancy    8. Drug addiction & substance abuse    9. Gynaecology & obstetrics    10. Paediatric medicine   

Subjects:  1. Alcohol    2. Children's Books/Ages 9-12 Nonfiction    3. Children: Young Adult (Gr. 7-9)    4. Effects of drugs on    5. Fetal alcohol syndrome    6. Fetus    7. Health & Daily Living - Diseases    8. Health & Daily Living - Substance Abuse    9. Health Sciences (Young Adult)    10. Juvenile Nonfiction    11. Juvenile literature    12. Social Problems (General) (Young Adult)    13. Medicine   

Editorial Review

When Michael Dorris, 26, single, working on his doctorate, and part Indian himself, applied to adopt an Indian child, his request was speedily granted. He knew that his new three-year-old son, Adam, was badly developmentally disabled; but he believed in the power of nurture and love. This is the heartrending story, full of compassion and rage, of how his son grew up mentally retarded, a victim of Fetal Alcohol Syndrome whom no amount of love could make whole. The volume includes a short account of his own life by the 20-year-old Adam, and a foreword by Dorris' wife, the writer Louise Erdrich. Read more

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Reviews (13)

People Who Work With Kids Need to Read This
This memoir/ public health history is engaging, disturbing and educational.It touched on many things to which I can relate...having a degree in anthropology (as the author does), being a former social worker and currently in school to become Special Ed. teacher I want to give this book to everyone I know who doesn't live in my world and see these things happening around them and to those who do live in my world so we can start a discussion about how to combat this tragedy.
A book to change your world
I consider this one of the most important books I've ever read (and like you, I've read A LOT of books).It's one of the few books you pick up in a lifetime that change how you see the world.Along with "Plagues and Peoples" and "Guns, Germs and Steel," it's in my permanent Top Three for non-fiction books.
Coping with Fetal Alcohol Syndrome
Michael Dorris, a single 26 year old professor of Native American Studies at Dartmouth, decided he wanted to adopt a child by himself, he didn't really know what he was getting himself into in The Broken Cord by Michael Dorris, a book that should be highly recommended to any reader.
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Subjects:  1. Biography    2. Biography / Autobiography    3. Family relations    4. Family relationships    5. Fetal alcohol syndrome    6. General    7. Health Care Delivery    8. Large Print    9. Large type books    10. Patients    11. United States   

Subjects:  1. Children of prenatal substance    2. Children of prenatal substance abuse    3. Cocaine    4. Effect of drugs on    5. Fetus    6. Gynecology & Obstetrics    7. Health/Fitness    8. Medical    9. Medical / Nursing    10. Neurology - General    11. Perinatology & Neonatology    12. Reference    13. Substance Abuse In Pregnancy    14. Toxicology    15. Materno-fetal medicine    16. Medical / Toxicology    17. Reproductive medicine   

Subjects:  1. Children's Books/Young Adult Religion    2. Health & Daily Living - Sexuality & Pregnancy    3. Jewish ethics    4. Jewish law    5. Judaism and social problems    6. Juvenile literature    7. Reform Judaism    8. Religion - Judaism    9. Social Issues - Drugs, Alcohol, & Substance Abuse   

Subjects:  1. Alcoholism in pregnancy    2. Bibliographies & Indexes    3. Bibliography    4. Complications    5. Family / Parenting / Childbirth    6. Family/Marriage    7. Fetal alcohol syndrome    8. General    9. Health & Fitness    10. Pregnancy & Childbirth    11. Substance Abuse In Pregnancy    12. Bibliographies, catalogues, discographies    13. Health & Fitness / Pregnancy & Childbirth    14. Materno-fetal medicine    15. c 1980 to c 1990   

Subjects:  1. Alcoholism in pregnancy    2. Complications    3. Diseases    4. Fetal alcohol syndrome    5. Health Policy    6. Medical    7. Medical / Nursing    8. Perinatology & Neonatology    9. Materno-fetal medicine    10. Medical / Health Policy   

Reviews (1)

Educating, Enriching, Enlightening
The pictures are great.The poems and stories are real.The women who put this book together are real people who got out there into the environment to tell the real story.It changed my mind to the way I thought about women and addictions.Kira and Fran are good people who know what telling truth is all about. ... Read more

Subjects:  1. Abused women    2. Child Care/Parenting    3. Children of prenatal substance    4. Children of prenatal substance abuse    5. Diet / Health / Fitness    6. Miscellanea    7. Photoessays & Documentaries    8. Substance Abuse & Addictions - General    9. Substance abuse in pregnancy    10. Substance use   

Subjects:  1. Alcohol    2. Alcohol And Health    3. Carcinogenicity    4. Fetal alcohol syndrome    5. Health/Fitness    6. Immunology    7. Immunosuppression    8. Medical / Nursing    9. Oncology    10. Endocrinology    11. Medical / Oncology    12. Medical toxicology    13. Pathology   

Subjects:  1. Effect of drugs on    2. Fetus    3. Health/Fitness    4. Infant, Newborn, Diseases    5. Medical / Nursing    6. Pediatrics    7. Perinatology & Neonatology    8. Prenatal Exposure Delayed Effe    9. Prenatal Exposure Delayed Effects    10. Substance Abuse In Pregnancy    11. Toxicology    12. chemically induced    13. Alcoholism    14. Drug addiction & substance abuse    15. Literary Criticism & Collections / English, Irish, Scottish, Welsh    16. Materno-fetal medicine   

Reviews (1)

Well designed book with good summaries by subject
In contrast to Drugs in Pregnancy and Lactation, which covers drugs by name, this text addresses disease categories and in many ways is a more useful text to overview specific problems. References complete and timely.A useful reference work to have on the shelf of any OB or primary carephysician. ... Read more

Subjects:  1. Drug abuse in pregnancy    2. Effect of drugs on    3. Fetus    4. Gynecology & Obstetrics    5. Health/Fitness    6. Medical    7. Medical / Nursing    8. Obstetrical pharmacology    9. Pharmacology    10. Pregnancy Complications    11. Substance Abuse In Pregnancy    12. Gynaecology & obstetrics    13. Medical / Gynecology & Obstetrics    14. Medicine | Obstetrics & Gynecology   

Subjects:  1. Drug Addiction (Pharmacological Aspects)    2. Drug abuse in pregnancy    3. Effect of drugs on    4. Fetus    5. Gynecology & Obstetrics    6. Health/Fitness    7. Infants (Newborn)    8. Maternal-fetal exchange    9. Medical    10. Medical / Nursing    11. Perinatology & Neonatology    12. Pharmacology    13. Pregnancy    14. Gynaecology & obstetrics    15. Medical / Gynecology & Obstetrics    16. Medical / Perinatology & Neonatology    17. Medical-Gynecology & Obstetrics    18. Medical-Pharmacology    19. Substance Abuse   

Subjects:  1. Alcoholism in pregnancy    2. Effect of drugs on    3. Fetal alcohol syndrome    4. Fetus    5. Health/Fitness    6. Medical / Nursing    7. Perinatology & Neonatology    8. Prevention    9. Substance Abuse In Pregnancy    10. Self-Help / Substance Abuse